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Sob story

post #1 of 30
12/9/08 at 2:01am
Thread Starter 
I have hemochromatosis and celiac sprue...I just found out not too long ago. They don't blend. Friends, family, doctors think it is very serious. I'm not an alarmist but this seems like something I should worry about. Anyone with any expertise in this field? I don't think this is very serious either but I would appreciate it if I didn't get too many jokes. Posting at my own risk...
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post #2 of 30
12/9/08 at 2:14am
I don't know shit about shit... I just had to look up both of those things, but it doesn't sound all that cool.

best of luck to you man.
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post #3 of 30
12/9/08 at 2:23am
I live in a gluten free house (both kids have celiac sprue). We eat very well. Good luck. PM me if you need any specific help.
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post #4 of 30
12/9/08 at 2:26am
The chef that teaches the class I'm currently in also has celiac sprue. I don't nkow much about hemachromatosis, but the good news is that you can still eat very well and live a normal life with celiac. If you need a chef, I'm just a PM away.
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post #5 of 30
12/9/08 at 2:29am
Thread Starter 
Quote:
Originally Posted by Tokyo Slim View Post
I don't know shit about shit... I just had to look up both of those things, but it doesn't sound all that cool.

best of luck to you man.

Gross, isn't it? I've hit a wall. I'm sure it will be reconciled.
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post #6 of 30
12/9/08 at 2:33am
Thread Starter 
Thanks for the responses, I'm still looking up info as I post here.
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post #7 of 30
12/9/08 at 2:35am
Thread Starter 
Quote:
Originally Posted by kwilkinson View Post
hemachromatosis
Shuts down organs--too much iron. Bad deal.
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post #8 of 30
12/9/08 at 2:43am
So basically, you are anticipating going on a low-iron no gluten diet? Saying goodbye to meat and wheat. = suck. But maybe it won't be that big of a deal for you. Remember It's not just meat, but a lot of greens are iron rich too! Basically you'll be eating otter pops and warm gin forever. I pity you. I will eat a pound of bacon in memory of you this weekend.
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post #9 of 30
12/9/08 at 2:47am
Quote:
Originally Posted by hossoso View Post
Shuts down organs--too much iron. Bad deal.

what size are you again ?
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post #10 of 30
12/9/08 at 2:48am
Thread Starter 
Quote:
Originally Posted by Tokyo Slim View Post
So basically, you are anticipating going on a low-iron no gluten diet?

Saying goodbye to meat and wheat. = suck. But maybe it won't be that big of a deal for you. Remember It's not just meat, but a lot of greens are iron rich too! Basically you'll be eating otter pops and warm gin forever.


I've been vegetarian since I was 13 (almost 28 now). No wheat will be a serious fucking problem! Asparagus tips too, I'm weighing my options. Nice knowing you (j/k).
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post #11 of 30
12/9/08 at 2:49am
Thread Starter 
Quote:
Originally Posted by dirk diggler View Post
what size are you again ?

5'11'/165. You can probably tell from those Seattle meet pics in MC.
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post #12 of 30
12/9/08 at 8:42am
http://digestive.niddk.nih.gov/ddise...osis/index.htm Apparently you have to give a pint of blood. Depending on how much iron you have determines your schedule. You can't have a low iron diet, that's pretty impossible.
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post #13 of 30
12/9/08 at 10:03am
I have to admit, it is kind of cool that "blood letting" is actually a treatment. Apparently they don't use leeches though, that is kind of disappointing...

Have you ever traveled to countries where wheat isn't common? The people still eat very well, I think. There are a number of starchy vegetables that you can replace wheat with very easily; potatoes, rice, yuca, etc (watch those for iron though).

Since you are a vegetarian, giving up red meat won't be a problem.

I'd recommend using http://www.nutritiondata.com/ to figure out what you can and can't eat.

Good luck.
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post #14 of 30
12/9/08 at 10:16am
I found this website when I had to cook Gluten free for a friend. Don't know if the products mentioned are readily available in the states. http://www.livaad.nl/Livaadengels.htm Good luck,
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post #15 of 30
12/9/08 at 11:22am
hossoso, I wish you all the best.
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