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Life with Crohn's (f**k Crohn's!).

post #1 of 23
Thread Starter 
All throughout my undergraduate years I recall feeling drowsy, frequently sleepy and weak in my stomach. I would nap constantly during the daytime and my energy levels were unpredictable at best. At some point I began to develop sporadic, sharp shooting paints in my lower intestinal tract.

Fast forward: I was diagnosed with Crohn's about a year ago. A very mild form requring little medication, but the disease is certainly a presence in my life. I have never suffered from debillitating pain in any way, but these days I am fairly conscious of what I eat and how it affects me. Dairy, for example, or excessive red meats or sugar can slow me down tremendously. Wheats, grains (gluten?), too, can cause the onset of my old symptoms: fatigue, drowsiness, etc.

I really dislike this illness. One day I'm young and invincible, the next day I'm a lazy, sad cat. I'm grateful, however, that it hasn't progressed to the point of serious pain, complication, or even surgery - and I'd certainly like to keep it that way. I thought I might ask, then, how those of you who live with Crohn's - whether mild or severe - have coped with, bettered, or even defeated it. What dietary, exercise, mental, etc. changes have worked for you? I'd even like to hear from those who may not have Crohn's, but who have a fair knowledge of diet, nutrition, etc. for those with auto-immune issues.

I wish I could meet Crohn's in a dark alley...
post #2 of 23
Sorry to hear that. No experience other than academic at this point but it's not a nice disease.
post #3 of 23
Sorry dude. I knew hot chick when I was younger who had that and had part of her colon removed.. she brought it to biology class for a show and tell . Glad you've got the mild version.
post #4 of 23
My brother was diagnosed with Crohns a few years ago and had pretty much the same experience as you. He had to have a few surgeries, but otherwise has been doing great on just mild medications and carefully watching his diet for the stuff you've listed. The biggest hangup with him is that when he goes out, he has to really watch how much he drinks, if he feels okay to drink at all.
post #5 of 23
Quote:
Originally Posted by warlok1965 View Post
Sorry dude. I knew hot chick when I was younger who had that and had part of her colon removed.. she brought it to biology class for a show and tell . Glad you've got the mild version.

Did you do her butt?
post #6 of 23
Quote:
Originally Posted by Sherman90 View Post
I wish I could meet Crohn's in a dark alley...

I say the same for Diabetes
post #7 of 23
Thread Starter 
Quote:
Originally Posted by BP348 View Post
I say the same for Diabetes
Chronic illness sucks, huh? One feels the invincibility of their spirit impotent against a tiny unknown foe. If only I had a scalpel and Crohn's were physical!
post #8 of 23
I'd rather have DM than Crohn's. Well Type II anyway.
post #9 of 23
Quote:
Originally Posted by Jumbie View Post
I'd rather have DM than Chron's. Well Type II anyway.

Yeah, that's a subjective call.

I knew 2 people that were convinced they had Crohn's disease. They were not proactive in their health monitoring ( though both had good health insurance ).

Turns out both of them had colo-rectal cancer and didn't discover it till it was in the late stages. Both are dead now!

Moral of the story. Don't self diagnose and stay on top of the situation. Good Luck.
post #10 of 23
Quote:
Originally Posted by rnoldh View Post
Yeah, that's a subjective call.

I knew 2 people that were convinced they had Crohn's disease. They were not proactive in their health monitoring ( though both had good health insurance ).

Turns out both of them had colo-rectal cancer and didn't discover it till it was in the late stages. Both are dead now!

Moral of the story. Don't self diagnose and stay on top of the situation. Good Luck.

FFS, you'd think I know how to spell it as Crohn's and Chron's. I blame the OP.

Crohn's increases your risk of colorectal cancer. Anyway, as you said, it's subjective. DM can be very bad in terms of systemic effects if uncontrolled long term but IMO it's easier to control than having inflammatory bowel disease. If one loses weight, exercises and eats correctly it's very, very manageable. Again, talking Type II (non-insulin dependent) here.
post #11 of 23
Quote:
Originally Posted by Jumbie View Post
Crohn's increases your risk of colorectal cancer.

Not trying to be an ass, but I thought it was ulcerative colitis.
post #12 of 23
Quote:
Originally Posted by chuckseabreeze View Post
Not trying to be an ass, but I thought it was ulcerative colitis.
Maybe. Let me look it up. I always get the two mixed up. Will edit with my reply. [edit] It does although UC is more likely to cause it. [/edit]
post #13 of 23
Quote:
Originally Posted by Jumbie View Post
Maybe. Let me look it up. I always get the two mixed up. Will edit with my reply.

[edit]

It does although UC is more likely to cause it.

[/edit]

Ah, good point.
post #14 of 23
Shan- best wishes. My brother's buddy has a sever case- should have been dead a decade ago but he's still getting by.

Chin up.
post #15 of 23
Quote:
Originally Posted by Jumbie View Post
FFS, you'd think I know how to spell it as Crohn's and Chron's. I blame the OP.

Crohn's increases your risk of colorectal cancer. Anyway, as you said, it's subjective. DM can be very bad in terms of systemic effects if uncontrolled long term but IMO it's easier to control than having inflammatory bowel disease. If one loses weight, exercises and eats correctly it's very, very manageable. Again, talking Type II (non-insulin dependent) here.

I didn't know this and I'll defer to the knowledge of the medical professional.

Maybe my friends did have Crohn's at one point then, and it progressed to colo-rectal cancer.

Either way they are both dead!

Sadly, like many diseases ( prostate cancer comes to mind ), early detection is key. Stage 1 colo-rectal cancer is highly treatable as is early detection prostate cancer. The key is catching these bastards early.

Getting back to what you said. DM 11 is serious but generally not a killer AFAIK. My mother has it ( and one day so will I too probably ). But with oral medication and good monitoring she copes with it quite well. If I had to choose ( and I hope I don't ) between Crohn's disease and DM 11, I would probably take DM 11 too.
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